Adults with congenital heart disease need specialized care

Not all heart problems develop as you age. Some, known as congenital heart disease or congenital heart defects, are present at birth. These birth defects affect the heart walls, valves or major blood vessels and can disrupt how blood flows through the heart to the rest of the body. As a result, some people with congenital heart disease can develop other heart conditions, such as congestive heart failure or arrhythmia.

If you have congenital heart disease, treatment depends on what type of defect you have and how it affects your health and quality of life. Regular visits with a cardiologist can help identify any changes in your condition and ensure you receive the care you need to thrive.

father with congenital heart disease hugging daughter and smiling at camera outside on sunny day

Types of congenital heart disease

There are many types of congenital heart disease. Some of the more common forms include:

Heart valve defects

Heart valve defects, also known as valvular heart disease, are flaws in the valves of the heart.

Your heart has four valves with flaps that open and close to help blood flow in a one-way course through the organ. The aortic valve, for example, has three flaps that allow blood to pass from the heart’s left ventricle into the aorta, a major artery that takes blood to the rest of the body. If you were born with a form of congenital heart disease called a bicuspid aortic valve, you have two flaps instead of three.

A bicuspid aortic valve can lead to aortic stenosis, which is when the valve is narrow or stiff. This forces the heart to work harder to pump enough blood. Aortic stenosis can cause shortness of breath during physical activity, lightheadedness and chest pain. A two-flap valve can also allow blood to leak backward into the ventricle, called regurgitation.

Congenital heart disease symptoms

Symptoms of congenital heart disease can often include:

  • Swelling, such as in the feet, ankles or hands
  • Shortness of breath
  • Fluid retention
  • Irregular heart rhythms or palpitations
  • Dizziness
  • Bluish fingernails, lips or skin
grandfather living with congenital heart disease sitting on couch reading to young granddaughter

What causes congenital heart disease?

The most common type of birth defect, congenital heart disease, occurs when a baby’s heart doesn’t develop properly during pregnancy. Doctors don’t always know why some babies’ hearts form defects, although genetic changes, some of which can pass from parent to child, may contribute.

Risk factors for having a baby with congenital heart disease include:

Diagnosing a congenital heart disease

Some people with congenital heart disease are diagnosed as babies or children. Many people, however, don’t learn they have a heart defect until they’re adults.

If your physician suspects a heart defect, they’ll start by asking you about your health history. They’ll also perform a physical exam to check for symptoms of congenital heart disease, such as abnormal heart rhythms or murmurs.

If your physician suspects genetics could play a role in your diagnosis, they may recommend genetic testing to find out whether a gene mutation could be the cause.

To gather more information, your physician may order tests, such as:

Electrocardiogram

An electrocardiogram (ECG or EKG) tracks the electrical signals in the heart to monitor its health and functionality.

Treatment for congenital heart disease

No two cases of congenital heart disease are alike. Your heart and vascular team will create a treatment plan just for you.

If you have a mild form of congenital heart disease, you may not need treatment. Instead, your cardiologist may recommend regular checkups to ensure your heart functions well and symptoms aren’t affecting your quality of life.

No matter what your treatment plan entails, it’s important to follow it closely. Take your medications as prescribed and don’t stop or start medicine without talking to your physician. Keep all checkup appointments so your healthcare provider can track how your treatment plan is working. Make healthy lifestyle changes to help protect your heart and complement your treatment. Finally, if you notice any new or worsening symptoms, tell your physician right away so you can work together to address them.

Find a location near you

We help you get care at a location that fits your needs. We offer several locations for congenital heart disease care, including specialized centers in North and Central Texas.

 Baylor Scott & White Cardiovascular Associates - Southwest Fort Worth

5701 Bryant Irvin Rd Ste 302, Fort Worth, TX, 76132

Not accepting walk-ins

Baylor Scott & White Advanced Heart Failure Clinic - Abilene

1219 E South 11th St Ste B2, Abilene, TX, 79602

Not accepting walk-ins

Baylor Scott & White Advanced Heart Failure Clinic - Amarillo

1901 Medi Park Dr Ste 2051, Amarillo, TX, 79106

Not accepting walk-ins

Baylor Scott & White Advanced Heart Failure Clinic - Dallas

3410 Worth St Ste 250, Dallas, TX, 75246

Not accepting walk-ins

Not accepting walk-ins

Not accepting walk-ins

Not accepting walk-ins

Not accepting walk-ins

Not accepting walk-ins

Accepting walk-ins

Baylor Scott & White Arrhythmia Management - Denton

3333 Colorado Blvd , Denton, TX, 76210

Not accepting walk-ins

Baylor Scott & White Arrhythmia Management - Frisco at PGA Parkway

16050 Everwell Ln Ste 210, Frisco, TX, 75033

Not accepting walk-ins

Baylor Scott & White Arrhythmia Management - Garland

7217 Telecom Pkwy Ste 205, Garland, TX, 75044

Not accepting walk-ins

Baylor Scott & White Arrhythmia Management - Grapevine

2020 W State Hwy 114 Ste 320, Grapevine, TX, 76051

Not accepting walk-ins

Baylor Scott & White Arrhythmia Management - Highland Village

1401 Shoal Creek Ste 240, Highland Village, TX, 75077

Not accepting walk-ins

Baylor Scott & White Arrhythmia Management - McKinney

5236 W University Dr POB I, Ste 4900, McKinney, TX, 75071

Not accepting walk-ins

Baylor Scott & White Arrhythmia Management - Plano

1820 Preston Park Blvd Ste 1450, Plano, TX, 75093

Not accepting walk-ins

Baylor Scott & White Arrhythmia Management - Prosper

111 S Preston Rd Ste 10, Prosper, TX, 75078

Not accepting walk-ins

Baylor Scott & White Cardiac and Thoracic Surgery - Fort Worth

1250 8th Ave Ste 200, Fort Worth, TX, 76104

Not accepting walk-ins

Not accepting walk-ins

Baylor Scott & White Cardiac and Thoracic Surgery - Odessa

420 E 6th St Ste 102, Odessa, TX, 79761

Not accepting walk-ins

Baylor Scott & White Cardiac and Thoracic Surgery - Weatherford

2035 Fort Worth Hwy Ste 100, Weatherford, TX, 76086

Not accepting walk-ins

Baylor Scott & White Cardiac Surgery - Dallas

621 N Hall St Ste 120, Dallas, TX, 75226

Not accepting walk-ins

Baylor Scott & White Cardiac Surgery Specialists - Denton

3333 Colorado Blvd , Denton, TX, 76210

Not accepting walk-ins

Baylor Scott & White Cardiac Surgery Specialists - McKinney

5236 W University Dr Ste 4900, McKinney, TX, 75071

Not accepting walk-ins

Baylor Scott & White Cardiac Surgery Specialists - Plano

4708 Alliance Blvd Pavilion I, Ste 540, Plano, TX, 75093

Not accepting walk-ins

Not accepting walk-ins

Baylor Scott & White Cardiology Consultants of Texas - Greenville

4400 Interstate 30 W Ste 300, Greenville, TX, 75402

Not accepting walk-ins

Not accepting walk-ins

Baylor Scott & White Cardiology Consultants of Texas - Midway

4431 E US Hwy 287 , Midlothian, TX, 76065

Not accepting walk-ins

Baylor Scott & White Cardiology Consultants of Texas - Park Cities

9101 N Central Expy Ste 300C, Dallas, TX, 75231

Not accepting walk-ins

Baylor Scott & White Cardiology Consultants of Texas - Red Oak

301 E Ovilla Rd Ste 100, Red Oak, TX, 75154

Not accepting walk-ins

Baylor Scott & White Cardiology Consultants of Texas - Waxahachie

2360 N Interstate 35E Ste 110, Waxahachie, TX, 75165

Not accepting walk-ins

Baylor Scott & White Cardiothoracic Surgery - Irving

1110 Cottonwood Ln Ste 215, Irving, TX, 75038

Not accepting walk-ins

Baylor Scott & White Cardiovascular Associates - Fort Worth

1307 8th Ave Ste 406, Fort Worth, TX, 76104

Not accepting walk-ins

Baylor Scott & White Cardiovascular Consultants - Denton

3333 Colorado Blvd , Denton, TX, 76210

Not accepting walk-ins

Not accepting walk-ins

Baylor Scott & White Cardiovascular Consultants - Grapevine

2020 W State Hwy 114 Ste 200, Grapevine, TX, 76051

Not accepting walk-ins

Baylor Scott & White Cardiovascular Consultants - Highland Village

1401 Shoal Creek Ste 240, Highland Village, TX, 75077

Not accepting walk-ins

Baylor Scott & White Cardiovascular Consultants - Keller

620 S Main St Ste 240, Keller, TX, 76248

Not accepting walk-ins

Baylor Scott & White Cardiovascular Consultants - Plano

6000 W Spring Creek Pkwy Ste 220, Plano, TX, 75024

Not accepting walk-ins

Baylor Scott & White Cardiovascular Consultants - Plano II

4708 Alliance Blvd Pavilion I, Ste 450 , Plano, TX, 75093

Not accepting walk-ins

Baylor Scott & White Cardiovascular Consultants at The Star

3800 Gaylord Pkwy Ste 910, Frisco, TX, 75034

Not accepting walk-ins

Baylor Scott & White Cardiovascular Specialists - Mesquite

5308 N Galloway Ave Ste 201, Mesquite, TX, 75150

Not accepting walk-ins

Baylor Scott & White Cardiovascular Specialists - Rockwall

6705 Heritage Pkwy Ste 202, Rockwall, TX, 75087

Not accepting walk-ins

Baylor Scott & White Center for Thoracic Surgery - Dallas

3410 Worth St Ste 760, Dallas, TX, 75246

Not accepting walk-ins

Not accepting walk-ins

Baylor Scott & White Center for Thoracic Surgery - Rockwall

6701 Heritage Pkwy Ste 130, Rockwall, TX, 75087

Not accepting walk-ins

Not accepting walk-ins

Baylor Scott & White Center for Thoracic Surgery - Waxahachie

2480 N Interstate 35E , Waxahachie, TX, 75165

Not accepting walk-ins

Frequently asked questions